Name: Violet's Village: The Journey of a One-In-A-Million Girl
Price: 1235.00 TWD
Availability: InStock
Author: Holmes, Kimberly ; Holmes, Kimberly ; Heal, Books That
ISBN: 9781633086357

portada Violet's Village: The Journey of a One-In-A-Million Girl

Violet's Village: The Journey of a One-In-A-Million Girl

Type

Physical Book

Author

Kimberly Holmes

Illustrated by

Kimberly Holmes

Contributions by

Books That Heal

Publisher

Chalfant Eckert Publishing

Language

English

Pages

Format

Paperback

Dimensions

21.6 x 21.6 x 0.2 cm

Weight

0.10 kg.

ISBN13

9781633086357

Synopsis "Violet's Village: The Journey of a One-In-A-Million Girl"

Violet was born with 3 rare one-in-a-million genetic disorders: Alternating Hemplegia of Childhood (AHC), Hemiplegic Migraine Type 2 (HM), and Congenital Muscular Dystrophy caused by Collagen 6 deficiency (UCMD). AHC is a movement disorder that is described as having every single neurological symptom that exists. Imagine having Cerebral Palsy, Parkinson's, MS, Autism, ADHD, Alzheimer's, etc all rolled into one disorder. It causes episodes of paralysis, dystonia (painful stiffening of limbs and body), involuntary eye-movements, seizures and more. Often, paralysis episodes cause loss of function or cognitive ability. This can be temporary or result in permanent decline. Violet has had a steep decline in recent years and is no longer walking, standing, or able to speak words she once knew. For more information on AHC, check out ahckids.org or watch the documentary on AHC at humantimebombs.com. Hemiplegic Migraine causes stroke-like migraines that cause facial drooping, paralysis, vision changes, nausea, and vomiting. These migraines can cause oral dysfunction, making it hard to eat. UCMD causes progressive muscle weakness, muscle wasting, respiratory issues, and joint contractures. This means Violet can fatigue quickly, have a hard time lifting objects, and her joints can get permanently stiff and less mobile. Living with any one of these conditions can be difficult, but Violet lives everyday with all three. Despite this, she is a happy girl filled with joy and love. Violet loves animals, high-fives, listening to music, dancing, and playing with spoons.

Customers reviews

Have you read this book? Login to add your review.

More customer reviews

0% (0)
0% (0)
0% (0)
0% (0)
0% (0)

Questions and Answers about the Book

Do you have a question about the book? Login to be able to add your own question.

Opinions about Bookdelivery

More customer reviews

Violet's Village: The Journey of a One-In-A-Million Girl - Holmes, Kimberly ; Holmes, Kimberly ; Heal, Books That

Synopsis "Violet's Village: The Journey of a One-In-A-Million Girl"

Customers reviews

Frequently Asked Questions about the Book

Is the book original?

In what language is the book written?

What is the format of this book?

Questions and Answers about the Book

Opinions about Bookdelivery